When healthy people hear the words chronic illness I find that many assume that because you may look okay that you are okay. It’s been in my experience that those who are healthy have a hard time believing someone who is chronically ill. It makes me want to scream! My illness or or illnesses I shall state began back in 1997 when I was first diagnosis with hemiplegic migraine.
Hemiplegic migraine is a rare migraine disorder in which the migraine is so severe that you can suffer from paralysis of your left or right side of your body and in very rare occasions whole body. But before I further delve into what is a hemiplegic migraine, it was this disorder that was the first stepping stone into living with chronic illness.
Since then I have dealt with various issues such as gestational trophoblastic disease, antibody big E, atypical ductal hyperplasia, transient ischemic attack (mini-stroke), epilepsy, celiac disease, six miscarriages, endometriosis, Steven Johnson Syndrome and mixed connective tissue disorder with overlapping soft connective tissue disorder.
The struggle is more than real.
All these disorders, miscarriages, and such has and still makes life very difficult to live. And not only that, but as a child I was subjected to sexual and emotional abuse which in turn made me a major depressive person. Although I sought therapy and gone to many a psychiatrist to discuss these issues something later on in life comes along and reels me back into the dark abyss of depression.
Because of these issues I decided to start a series called Living With. Living with will be about health and well being issues that I’m dealing with and hopefully it will help others who are in the same boat as I’m in. I want others to know that they aren’t alone. That life can go on and it is worth living. I’ve been through many a personal hell and back and I know that if I can survive so can you.
The Living With series will also give advice and references to doctors that I may find helpful in the San Antonio, Texas area. I’m not a doctor, nor do I claim to be but my journey with chronic illness can be of use to someone who may be going through the same issues or have a better understanding of someone you may know that is chronically ill and has be diagnosis with the same disorders.
Chronic illness doesn’t just affect me, it affects every single member of my family including my marriage. It is hard to maintain a happy marriage when reality is far from it and consists of taking care of someone who is so sick they can barely make it to the toilet on time.
Living With will be schedule to post once a week. I hope it helps you or a family member or friend struggling with these issues.
All the best.